Please read below a touching story “The terrorist inside my husband’s brain” from Susan Schneider Williams, BFA, wife of late actor Robin Williams who took his own life as a result of a heavy struggle with a brain disease called Lewy body disease (LBD).
This story was first published on www.neurology.org and Neurology September 27, 2016 vol. 87 no. 13 1308-1311 (more…)
President and vice president of SAFE co-chairing self management in stroke session at WSO Congress in Hyderabad, India.
Three examples of studies and digital programs were presented at an early morning lecture session on “Stroke support organisations and Self Management”. (more…)
The pilot Stroke Advocacy Training Program was held in Hyderabad, India on Tuesday 25th October 2016, organised by WSO.
There are many things that individuals can do to reduce their stroke risk and maximize their recovery from stroke. Public Awareness campaigns are important in helping people with this, as well as raising awareness about the impact of stroke and the importance of a good health care system for stroke.
Good government policy also plays an important role. Governments at a national, regional or city level make decisions about healthcare resources and regulations that can make a tremendous difference in stroke prevention, assessment treatment and rehabilitation. (more…)
A robotic arm and a virtual game were essential tools in a new study from researchers at Johns Hopkins Medicine. The study results suggest that while training doesn’t change neurological repair in chronic stroke patients, it can indeed help such patients learn new motor skills and achieve more independence in their daily lives.
A report on the work is published in the journal Neurorehabilitation and Neural Repair on Oct. 27. (more…)
Henry Barnett, MD, highly regarded neurologist, acclaimed stroke prevention researcher, and cofounder of the Robarts Research Institute in London, Ontario, Canada, died last week at the age of 94, a release from the Institute notes.
“He was a pioneer, a founder, and the father of the scientific and therapeutic phase of our field,” fellow cofounder Vladimir Hachinski, MD, Department of Clinical Neurological Sciences at the University of Western Ontario, told Medscape Medical News. (more…)
Today is the World Stroke Day 2016
STROKE IS TREATABLE
And treatment should be equally available across Europe
Stroke Alliance for Europe marks the World Stroke Day 2016 by joining forces with scientific and commercial partners in an attempt of measuring the actual state of stroke care across Europe, said Jon Barrick, President of SAFE.
According to the World Health Organization 17 million people worldwide suffer a stroke each year, and 6.5 million don’t survive, yet stroke, as a burden of disease, still remains little understood. (more…)
The President and Board of the WSO offered Jon Barrick, the President of SAFE, the role of being the next Chairman of the World Stroke Campaign, which he has accepted.
I think it will be good for us to be able to shape awareness and advocacy work at world level, said Barrick.
The WSD Campaign Committee and Working Group will have a lot to do in developing the new campaign theme for the 2017 World Stroke Campaign and World Stroke Day. SAFE is honoured to have our President leading the WSD17 Campaign Team. (more…)
EFNA needs people to get involved in the action to ensure access to employment for those affected by neurological disorders and chronic pain conditions.
Written Declaration no. 0112/2016 was launched on October 24th. We now have until mid-January to ensure that over half of all Ministers of the European Parliament sign this Declaration, to ensure that it does not lapse.
Please help us to achieve this goal, which will benefit all those affected by neurological and chronic pain conditions across the EU.
WSD16Stroke can happen to anyone at any age. World Stroke Day 2016 recognizes that although stroke is a complex medical issue, there are ways to significantly reduce its impact. We are calling everyone – individuals, families, communities, health professionals and governments – to join the fight against stroke. Let’s take action, drive awareness and push for better access to stroke treatments.
Stroke is the number one cause of long term severe disability. Stroke survivors and their families are dependent on progress around neurological research and neurorehabilitation to ameliorate their disability. From a patient perspective, it makes no sense for stroke to be under cardiac disease. SAFE strongly supports the previous decision ICD-11 of having all types of strokes in a single block, and that this block should be placed in the nervous system diseases chapter.
Please read below the reaction of the most eminent stroke experts to the WHO ICD-11 Classification Committee to move the newly created cerebrovascular block from neurology to circulatory disease. (more…)
