The University of Ulster is conducting a research study focusing on the unseen and unmet needs of younger stroke survivors (under age 65).
They are looking for young stroke survivors, carers and stroke healthcare professionals from across Europe to participate by completing a 10-15 minute online questionnaire.
Go to the questionnaires for:
Please complete by the end of March.
Registration is open for the virtual summit which will identify the best ways for an effective and coordinated implementation of the WHO global action plan on neurological disorders in Europe.
For more information and to register, visit this link and click on the pink ‘register now’ button which will take you to the event platform:
The Essentials of Stroke Care provides a practical tool to guide healthcare professionals in improving stroke care and developed as part of the Stroke Action Plan for Europe.
The Guide contains an overview of evidence-based interventions covering the entire chain of stroke care. The Essentials of Stroke Care sets an essential and much-needed standard for providing stroke care in the pre-hospital setting, during the acute hospital stay, rehabilitation and life after stroke, and includes surgical, pharmacological, non-pharmacological, and supportive interventions.
Listen to Professor Thornsten Steiner talk about the importance of the Essentials of Stroke Care https://www.youtube.com/watch?v=EJPan2W1OQQ
Download the guide here https://actionplan.eso-stroke.org/sap-e-essentials-of-stroke-care/
The Minister of Health of the Generalitat de Catalunya, Josep Maria Argimon, has signed the letter of adherence to the Stroke Action Plan for Europe 2018- 2030.
Alongside the members of the Catalan Steering Committee of the Stroke Action Plan for Europe, which includes representatives of one of members Fundacio Ictus, the Catalan Health Minister highlighted the Catalan Health Department’s commitment to this initiative.Find out more about the Stroke Action Plan for Europe Declaration at: https://eso-stroke.org/declaration-for-action-on-stroke-launches-on-european-stroke-awareness-day/
For more information about the Stroke Action Plan for Europe visit: http://actionplan.eso-stroke.org
Take a Selfie and help the FAST Heroes set a new official world record
The FAST Heroes educational campaign wants to raise awareness of the symptoms of stroke. As part of their target to reach one million children, FAST heroes plan to set a new official world record for the largest online photo album. To help them reach their target of 2,0000 photos, you can upload your own photo wearing a superhero mask at https://recordattempt.fastheroes.com
If you upload four photos, you will receive a certificate of participation. If you do not have a mask, you can print your own at https://recordattempt.fastheroes.com/gr/mask
FAST Heroes was created by created by the University of Macedonia in collaboration with the Angels Initiative in 2019 to help children understand the importance of the immediate action we need to take when someone has a stroke.
The programme is now active in more than 20 countries worldwide, including many European countries, South Africa, Canada, United Arab Emirates, Iceland, Singapore and others.
The Stroke Media and Advocacy Resource Training (SMART) videos cover a range of topics, such as how stroke support organisations can prepare an advocacy plan, how they can involve stroke survivors in national advocacy work and how they can engage with the local media and influence decision-makers.
Based on our media and advocacy training workshops organised in 2020, the videos are available to view on our YouTube channel to support anyone who is trying to implement the Stroke Action Plan for Europe in their country.
You can watch the SMART videos here: https://bit.ly/3EzhsTN
Visit regularly https://actionplan.eso-stroke.org/ for further materials that will be useful for your stroke advocacy campaign.
The Active Citizenship Network has launched an online survey: The impact of the COVID-19 pandemic on non-communicable and chronic patients’ therapeutic adherence across Europe.
The questionnaire is for patient associations and advocacy groups, including stroke support organisations.
The survey is anonymous but if you contribute, your organisation will be cited in the final report. Click here to fill in the EU survey!
The deadline is 9 December 2021.
If you missed our virtual event last month, do not worry, you will now be able to watch the session at your leisure as it now available on demand at our European Life After Stroke website www.elasf.org
Jana Dobrkovská from stroke support organisation Cerebrum in the Czech Republic, Professor Carlo Semenza (Italy) and Dr Carla Pereira (Portugal) discuss the importance of looking after those who are the caregivers of stroke survivors.
‘Very interesting webinar! Congrats to SAFE TEAM for organizing this excellent webinar’ Event participant
The Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual Unite Summit.
This virtual conference will take place over two half days, with the aim of uniting and empowering cardiovascular patients, advocates and organisations on matters of importance to the community. The sessions will delve into:
Register for this FREE event at https://globalhearthub.org/unite/
The annual conference of the MEP Interest Group on Brain, Mind and Pain will explore best practices in reducing health inequalities for those living with neurological disorders and chronic pain conditions.
There will be a focus on stigma, access and patient empowerment with a look at population groups prone to experiencing healthcare inequities, such as older people and women.
See agenda and link to register here: https://efna.cplus.live/sign-up/turning-principles-into-action
