European Stroke Organisation Guideline Webinar
The European Stroke Organisation have organised a Guideline Webinar on stroke in women.
It will take place on Tuesday, 29 March, 16:00 – 17:30 CET.
Register for your free place.
Arlene Wilkie highlights the importance of Life After Stroke
There are more than nine million people living with stroke in Europe.
The number of people living with stroke is set to increase as our population ages.
Life after stroke is a key component of the stroke care pathway. It needs to be made a priority and improved across Europe.
Check out this short video by Arlene Wilkie, Director General of SAFE, to know more about the importance of life after stroke.
Find out about our European Life After Stroke Series and the Stroke Action Plan for Europe
European Life After Stroke Series – next event date announced
The next event in the European Life After Stroke series will be on Wednesday 9 November.
More details on the programme and speakers will be announced later in the year.
Our last event on 11 March 2022, covered the topics of Self-management after stroke and communication after stroke:
That seminar was uplifting, inspirational, and so well delivered. A huge amount of work to get this show on the road – and it was brilliant. Lots of ideas, take home messages and further reading. 11 March event participant
The event will be available to view on-demand early next month. You can catch up on the events held last year at www.elasf.org
Statement from our President, Hariklia Proios on Ukraine
On Friday 11 March, we held our Life After Stroke event. Our thoughts were with all of those in the Ukraine, and the atrocious loss of life and suffering they are facing
Each day this war continues, means a more dreadful place for those living with stroke and their families.
We deplore this war and the impact it is having on the provision of vital stroke services, care and support.
Many hospitals have been damaged or destroyed. Medical and allied healthcare professionals are desperately struggling to save the lives of, and care for those who have had a stroke. Healthcare professionals themselves are being caught up in the attacks on civilians. Patient organisations are unable to provide the full support that stroke survivors desperately need.
Those who are living with stroke, whether still in Ukraine or fleeing the country, are suffering from a lack of available medicine, care and support.
This situation is unthinkable in the 21st century.
We are calling for the international community to support Ukraine and the surrounding countries to urgently restore continuity to stroke care.
We must see an immediate end to this war.
SAFE supports Brain Awareness Week 14 – 20 March
This awareness week is a global campaign to engage the general public in brain science, and the impact brain research has on our everyday lives.
During Brain Awareness Week, we will be focussing on the importance of stroke research.
We will highlight the latest news from our EU research partners:
‘Stroke research is so important in helping us reduce deaths from stroke and improve the health and wellbeing of stroke survivors.
That is why it is so important for us to support this EU research and promote the potential impact it can have on the stroke patient.’
Arlene Wilkie, Director General, Stroke Alliance for Europe
Life After Stroke event puts a spotlight on stroke survivors
We are delighted that stroke survivors are taking the stage at our Life After Stroke event this Friday, 11 March 2022.
Stroke survivors Mina Michalatou, Greece, Jürg Schwyter, Switzerland, Scott Ballard-Ridley, England, and Alexia Kountouri, Cyprus, will share their experiences of overcoming communication barriers after stroke.
Find out more information about the full programme and book your free place.
The European Life After Stroke Forum Series event has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®).
Stroke Action Plan for Europe Factsheet published
With the European Stroke Organisation, we have now published a Factsheet on the Stroke Action Plan for Europe 2018-2030.
This summary will help more people understand the basic tenets of the Stroke Action Plan for Europe and how the Plan aims to improve stroke care across the seven domains of the stroke care pathway.
You can download the Factsheet and find out more information at https://actionplan.eso-stroke.org/
Survey launched to mark International Women’s Day
Today is International Women’s Day. To coincide with this, the European Federation of Neurological Associations has launched a survey, Assessing diagnosis and care pathways of people living with neurological disorders in Europe.
Despite higher prevalence among women of many neurological disorders gender stereotypes can lead to underdiagnosis and delayed treatment.
The survey aims to help identify the challenges facing all affected by neurological conditions, including stroke.
The survey is open to anyone 18+, living with a neurological disorder, or their carers and is available in eight languages (English, French, German, Italian, Spanish, Portuguese, Polish and Romanian).
SAFE’s response to the war in the Ukraine
As a membership organisation representing Stroke Support Organisations from across Europe, our thoughts are with our colleagues, friends, stroke survivors, their families and carers in all the areas affected by this war.
We do not condone any activity that negatively affects the welfare and the wellbeing of people with stroke and the wider stroke community, as well as all civilians in the Ukraine.
We remain focused and united with our partners and hope for a swift resolution.
Accreditation for the European Life After Stroke series confirmed
The European Life After Stroke Forum Series event has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®).
Participants will be awarded three European CME credits (ECMEC®s) for attending both plenary sessions on 11 March 2022.
Plenary 1 – Be inspired and share control: the added value of self-management support, 10.00-11.30 CET
Drawing on examples from research and clinical practice, this session will inspire you to consider the potential of self-management support to help more people post stroke feel supported, engaged and confident to self-manage.
Our speakers are: Professor Fiona Jones (England), Dr Lisa Kidd (Scotland), and Professor Hanne Palleson and Mette Brandi (Denmark) will be sharing their research and insights on self-management, alongside stroke survivor Scott Ballard-Ridley (England).
Plenary 2 – Life after stroke: Communication in everyday life, 15.00 – 16.30 CET
This session will focus on overcoming communication barriers after stroke. Stroke survivors will share their experiences and show that even without aphasia, communication failures are common. It will explore potential solutions to address these issues.
Our speakers are: Professor Jean-Marie Annoni (Switzerland) will be joined by stroke survivors Mina Michalatou (Greece), Professor Jürg Schwyter (Switzerland) and Alexia Kountouri.
Join us!
Visit the website for programme details.
Book your free place at bit.ly/33vv8lG
