The European Federation of Neurological Associations (EFNA) has launched a new survey to assess and quantify the invisible issues affecting neurology patients and caregivers in Europe.
The aim is to identify, measure and report on these invisible issues (for example pain, stigma, fatigue) as faced by those affected by neurological conditions, either as patients or caregivers. Data generated through this survey can be used to create awareness of these issues and to advocate for change to address them.
This survey is open to anyone over the age of 18 who is living with a neurological condition, or who is carer to someone living with a neurological condition, that resides in Europe. It is available in 8 languages: English, French, German, Spanish, Portuguese, Italian, Polish and Romanian.
Findings from the survey will be published on the EFNA website later this year, and included for presentation at the next meeting of the MEP Interest Group on Brain Health and Neurological Conditions.
The survey will be open until 30/08/2024.
